So I’ve been doing a lot of research on various websites lately on several different meds I take and the outlook is pretty grim. This all started because about a month ago, I was put on a new med with what drugs.com said had 109 side effects, including extreme rage, anxiety, hostility, suicidal tendencies, depression, and more. That’s a little worrisome. So we monitored how I did and to our relief, I didn’t experience any of those. What I did experience were extreme drowsiness, bloody noses, chest pains, dry mouth, and extreme tiredness, to the point of making it difficult for me to function throughout the day. But the payoff was good because the med — for pain — was actually working! However, as I started researching, I noticed the med was mentioned with another med that I was on, another fairly new one, that also had extreme tiredness as a side effect. Double whammy, I guess. Then, as I continued to research, I found a site that listed countless posts with people discussing three meds that I’m on — one I’ve been on for a long time — and a cocktail they believe is responsible for both short and long term memory loss. Big time memory loss. Very sobering. I guess the good thing is I’m on average doses for two of them and a smallish dose for the third, so I guess that’s good, but I’m really fatigued all of the time, just worn out. And my memory’s been going for awhile now. But perhaps more importantly, I can’t function during the day anymore. In the morning, I’m dropping off early and it doesn’t help that I’m a severe insomniac, often up at 1 or 2 AM. I’m usually good late in the morning or during the mid afternoon, but by late afternoon, I’m nodding off in a chair and by evening, I’m falling asleep in a chair and I’m ready for bed by 8. I don’t usually make it to bed that early, but I’m ready. It’s gotten so bad that it’s rough for me to drive during the day. I’ve fallen asleep at red lights. And yet I have a hard time taking naps. Go figure. It makes no sense. I get three hours of sleep a night, typically, and can’t sleep during the day, often, except now I’m always tired and nodding off. And it’s the meds. I’ve read about a few people who said their side effects cleared up when their doses were doubled. I’m a little concerned about asking for that, but I’m willing to give it a try. I’m going to try and call one of my doctors today about this. Four different doctors are monitoring these three meds I’m on. Surely one of them will have something decent to say about it! And the thing is, my pain level has substantially decreased, so I don’t want to decrease my med dose. It’s working. But something’s got to be done about the fatigue. I’m already taking Nuvigil and Adderral. I don’t know what else they could do about that. Maybe doubling the dose would do it. I’m willing to try it. Gah! These meds are going to be the death of me!
5 thoughts on “Med Cocktail Mess”
I ain’t a doctor, and I don’t take anything stronger than ibuprofen. The meds all do things to you, and you have to decide what kind of crap you’re willing to put up with. If you’re pain is tolerable, try sleeping a couple hours 3 or 4 times a cycle. Don’t get hurt or killed over fatigue.
Hi Rusty. Thanks for your comment. I have trigeminal neuralgia, so the pain typically isn’t tolerable. In fact, I’ve had a number of surgical procedures for it over the years. Usually they don’t do too much for me. I’m trying to find a new neurosurgeon. Right now, the fatigue is an acceptable tradeoff for the lack of pain.
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I am glad for that. Just be careful, and recognize your limitations.I like reading your stuff.
Do be careful Scott. So many times doctors really don’t pay enough attention to the combination of drugs they prescribe (along with other doctors) for their patients. Don’t laugh, but have you tried an herbal pharmacist/specialist?
You are doing the right thing by monitoring how you feel on the meds and on the side effects you experience. And keeping on top of your docs to make sure they know what’s going on.
Knowing the side effects can be overwhelming, but it’s important.
I really feel for you on the sleep issues. 😦
Hang in there!
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